{"id":53698,"date":"2023-09-10T08:06:07","date_gmt":"2023-09-10T05:06:07","guid":{"rendered":"https:\/\/kutaybilen.com.tr\/?p=53698"},"modified":"2023-09-10T08:06:07","modified_gmt":"2023-09-10T05:06:07","slug":"kocaeli-itfaiye-calisaninin-sma-hastasi-oglu-icin-yardim-kampanyasi-baslatildi","status":"publish","type":"post","link":"https:\/\/kutaybilen.com.tr\/?p=53698","title":{"rendered":"Kocaeli \u0130tfaiye \u00c7al\u0131\u015fan\u0131n\u0131n SMA Hastas\u0131 O\u011flu \u0130\u00e7in Yard\u0131m Kampanyas\u0131 Ba\u015flat\u0131ld\u0131"},"content":{"rendered":"

<\/p>\n

KOCAEL\u0130 B\u00fcy\u00fck\u015fehir Belediyesi \u0130tfaiye Dairesi Ba\u015fkanl\u0131\u011f\u0131 G\u00f6lc\u00fck \u0130tfaiye K\u00fcme Amirli\u011fi i\u015f\u00e7isi Osman Erbay (30) ve e\u015fi Ebru Erbay’\u0131n (30) SMA Tip-1 te\u015fhisi konulan 2 ayl\u0131k o\u011fullar\u0131 Aytun Mira\u00e7’\u0131n yurt d\u0131\u015f\u0131nda zolgensma tedavisi i\u00e7in gerekli olan paran\u0131n toplanmas\u0131 hedefiyle valilik onayl\u0131 yard\u0131m kampanyas\u0131 ba\u015flat\u0131ld\u0131. Osman Erbay, ‘Ben bir\u00e7ok cana, canla ba\u015fla hayat olmak i\u00e7in ko\u015fturuyorum. Grup arkada\u015flar\u0131m o denli. Herkesten Allah raz\u0131 olsun ancak ben kendi evlad\u0131m\u0131 o ate\u015fin i\u00e7inden bir t\u00fcrl\u00fc alam\u0131yorum’ dedi.<\/p>\n

‘GER\u00c7EKTEN \u015e\u0130DDETL\u0130 B\u0130R S\u00dcRE\u00c7’<\/p>\n

2 y\u0131l evvel evlendiklerini belirten Osman Erbay, ‘O vakit e\u015flerde SMA test taramas\u0131 yoktu. 2022’nin son vakitlerinde ba\u015flad\u0131. O\u011flumuza 17 g\u00fcnl\u00fckken SMA te\u015fhisi konuldu. Tabi biz bir \u015fok ya\u015fad\u0131k. Beklemiyorduk. Ailemizde yoktu. Akraba evlili\u011fi de\u011fildi ama \u00fcz\u00fcnt\u00fcy\u00fc bir kenara b\u0131rak\u0131p neler yapmam\u0131z gerekti\u011fini, biz asl\u0131nda ko\u015fturmaya ba\u015flad\u0131k ki etraf\u0131m\u0131zdan bir\u00e7ok insan elini uzatt\u0131. Allah raz\u0131 olsun. Nitekim kuvvetli bir s\u00fcre\u00e7. Zira d\u00fcnyan\u0131n en k\u0131ymetli ilac\u0131 bu t\u0131p tedavide kullan\u0131l\u0131yor. \u015eu anda o\u011flumuz Kocaeli \u00dcniversitesi Hastanesi Umuttepe Yerle\u015fkesi’nde yat\u0131yor. Yatma sebebi zat\u00fcrre. Kaslar\u0131 tam \u00e7al\u0131\u015ft\u0131ramad\u0131\u011f\u0131 i\u00e7in \u00f6ks\u00fcrerek, hap\u015f\u0131rarak bedeninden mikrobu atamad\u0131. Bu sebepten \u00f6t\u00fcr\u00fc yat\u0131yor. 2 hafta oldu; \u015fimdi taburcu olmad\u0131’ dedi.<\/p>\n

‘B\u0130R\u00c7OK CANA HAYAT OLMAK \u0130\u00c7\u0130N KO\u015eTURUYORUM’<\/p>\n

‘O\u011eLUMUZDA HASTALIK \u00c7OK ERKEN BEL\u0130RT\u0130 VERD\u0130’<\/p>\n

Ya\u015fad\u0131klar\u0131 s\u00fcreci anlatan Osman Erbay, ‘2’nci topuk kan\u0131 testinde tarama yap\u0131l\u0131yor. Bu tarama Ankara ve \u0130stanbul’a gidiyor. Laboratuvarlarda inceleniyor. \u0130ncelendikten sonra te\u015fhis konuluyor. Bize te\u015fhis konuldu. T\u00fcrkiye’deki ilac\u0131m\u0131z\u0131 pazartesi g\u00fcn\u00fc ald\u0131k. Bu ila\u00e7 da yurt d\u0131\u015f\u0131ndan geliyor. T\u00fcrkiye onay\u0131ndan ge\u00e7erek geliyor. Allah’a \u015f\u00fck\u00fcr. Bunun dozlar\u0131 var. Bu ila\u00e7lar kas\u0131 korumak i\u00e7in. Onun maliyeti de \u00e7ok y\u00fcksek. Allah’a \u015f\u00fck\u00fcr \u00fclkemiz, devletimiz kar\u015f\u0131l\u0131yor bunu kas kayb\u0131 olmamas\u0131 i\u00e7in. Yurt d\u0131\u015f\u0131 tedavisine gidene kadar bu ilac\u0131 da sistemli olarak almam\u0131z gerekiyor. \u015eu anda \u00e7ocu\u011fumuzda rastgele bir tesir olmad\u0131 zira kollar\u0131, ayaklar\u0131 hastal\u0131\u011f\u0131ndan \u00f6t\u00fcr\u00fc tam oynam\u0131yor. O\u011flumuza hastal\u0131k asl\u0131nda \u00e7ok erken belirti verdi. Bu kadar erken beklemiyorduk. G\u00f6r\u00fc\u015ft\u00fc\u011f\u00fcm\u00fcz ailelerde de bu kadar erken olmam\u0131\u015f. O y\u00fczden \u00e7ok k\u0131sa vakit i\u00e7inde paray\u0131 insanlar\u0131m\u0131z\u0131n, milletimizin sayesinde toplayarak bu tedaviye gitmeyi istiyoruz’ s\u00f6zlerini kulland\u0131. (DHA)<\/p>\n

Kaynak: Demir\u00f6ren Haber Ajans\u0131 \/ S\u0131hhat <\/div>\n","protected":false},"excerpt":{"rendered":"

Kocaeli B\u00fcy\u00fck\u015fehir Belediyesi \u0130tfaiye Dairesi Ba\u015fkanl\u0131\u011f\u0131 G\u00f6lc\u00fck \u0130tfaiye K\u00fcme Amirli\u011fi i\u015f\u00e7isi Osman Erbay ve e\u015fi Ebru Erbay’\u0131n SMA Tip-1 te\u015fhisi konulan 2 ayl\u0131k o\u011fullar\u0131 Aytun Mira\u00e7’\u0131n tedavisi i\u00e7in yard\u0131m kampanyas\u0131 ba\u015flat\u0131ld\u0131.<\/p>\n","protected":false},"author":1,"featured_media":53699,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[1],"tags":[7750],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/53698"}],"collection":[{"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=53698"}],"version-history":[{"count":1,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/53698\/revisions"}],"predecessor-version":[{"id":53700,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/53698\/revisions\/53700"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/media\/53699"}],"wp:attachment":[{"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=53698"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=53698"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=53698"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}