{"id":49406,"date":"2023-08-08T03:06:05","date_gmt":"2023-08-08T00:06:05","guid":{"rendered":"https:\/\/kutaybilen.com.tr\/?p=49406"},"modified":"2023-08-08T03:06:05","modified_gmt":"2023-08-08T00:06:05","slug":"sma-hastalarinin-ilac-talebi","status":"publish","type":"post","link":"https:\/\/kutaybilen.com.tr\/?p=49406","title":{"rendered":"SMA Hastalar\u0131n\u0131n \u0130la\u00e7 Talebi"},"content":{"rendered":"

<\/p>\n

HABER: MERVE \u0130NAN\u00c7 – KAMERA: UMUT DO\u011eAN<\/strong> <\/p>\n

SMA hastal\u0131\u011f\u0131na yakalanan \u00e7ocuklar\u0131n aileleri, ila\u00e7 talebiyle bug\u00fcn Sa\u011fl\u0131k Bakanl\u0131\u011f\u0131<\/strong>‘n\u0131n \u00f6n\u00fcne bas\u0131n a\u00e7\u0131klamas\u0131 yapt\u0131. Aileler, ” T\u00fcrkiye<\/strong>‘de \u015fu anda spinraza diye bir ila\u00e7 var, tedarik s\u0131k\u0131nt\u0131m\u0131z var. S\u0131hhat Bakanl\u0131\u011f\u0131 bununla ilgili bir a\u00e7\u0131klama yapm\u0131yor. 3 ayd\u0131r bu ilac\u0131 bizim \u00e7ocuklar\u0131m\u0131z alam\u0131yor. Biz bu ilac\u0131n bir an evvel gelmesini talep ediyoruz. \u00c7ocuklar\u0131m\u0131z kas kayb\u0131yla \u00e7aba ediyor” dedi.<\/p>\n

SMA hastal\u0131\u011f\u0131na yakalanan \u00e7ocuklar\u0131n aileleri, bug\u00fcn S\u0131hhat Bakanl\u0131\u011f\u0131’n\u0131n \u00f6n\u00fcne giderek bas\u0131n a\u00e7\u0131klamas\u0131 yapt\u0131. Aileler, “T\u00fcrkiye gelece\u011fini kaybediyor, SMA’l\u0131lar ila\u00e7 bekliyor”, “Kar\u015f\u0131l\u0131yoruz diyorsunuz 6 ay oldu spinraza bile vermediniz” “Evlatlar\u0131m\u0131z\u0131 ya\u015fama hakk\u0131n\u0131 verin” “Tan\u0131 var tedavi yok” “Dilene dilene ila\u00e7 istiyoruz” pankartlar\u0131 a\u00e7t\u0131. Aileler ismine \u015fu a\u00e7\u0131klama yap\u0131ld\u0131: <\/p>\n

“EVLATLARIMIZIN YA\u015eAMASI \u0130\u00c7\u0130N AC\u0130LEN HAREKET ED\u0130LMES\u0130N\u0130 \u0130ST\u0130YORUZ”<\/strong> <\/p>\n

“SMA hastal\u0131\u011f\u0131n\u0131n 3 farkl\u0131 ilac\u0131 bulunmakta olup d\u00fcnya \u00fczerinde Avrupa ve Amerika \u00fclkelerinde bu ila\u00e7lar hekim denetimi ile ve tip \u00e7e\u015fitlerine nazaran kendi vatanda\u015flar\u0131na fiyats\u0131z bir formda verilmektedir. \u00dclkemizde b\u00fct\u00fcn SMA tiplerine t\u0131pk\u0131 spinraza ilac\u0131 verilmektedir. 3 ayd\u0131r ila\u00e7 \u00fclkemizde bulunmamaktad\u0131r. S\u0131hhat Bakanl\u0131\u011f\u0131 bu bahisle ilgili tek bir a\u00e7\u0131klama yapmamaktad\u0131r. Biz SMA hastas\u0131 aileleri olarak 3 ilac\u0131nda \u00fclkemizde olmas\u0131n\u0131 ve \u00e7ocuklar\u0131m\u0131z\u0131n bu ila\u00e7lara fiyats\u0131z olarak ula\u015fmas\u0131n\u0131 istiyoruz. Evlatlar\u0131m\u0131z\u0131n ya\u015famas\u0131 i\u00e7in acilen hareket edilmesini istiyoruz. 3 ilac\u0131n da \u00fclkemizde olmas\u0131 i\u00e7in a\u00e7\u0131klama bekliyoruz.”<\/p>\n

“SA\u011eLIK BAKANLI\u011eI TAR\u0130H VERS\u0130N”<\/strong> <\/p>\n

Ankara’ya Tekirda\u011f’dan geldi\u011fini s\u00f6z eden SMA hastas\u0131 yak\u0131n\u0131 vatanda\u015f ise \u015f\u00f6yle konu\u015ftu: <\/p>\n

“T\u00fcrkiye’de \u015fu anda spinraza diye bir ila\u00e7 var. \u015eu anda bir tedarik meselemiz var. S\u0131hhat Bakanl\u0131\u011f\u0131 bununla ilgili bir a\u00e7\u0131klama yapm\u0131yor. 3 ayd\u0131r bu ilac\u0131 bizim \u00e7ocuklar\u0131m\u0131z alam\u0131yor. Biz bu ilac\u0131n bir an evvel gelmesini talep ediyoruz. \u00c7ocuklar\u0131m\u0131z kas kayb\u0131yla u\u011fra\u015f ediyor. S\u0131hhat bakan\u0131m\u0131z televizyonda bu ila\u00e7lar\u0131n verilebilece\u011fini \u015fu anda \u00e7al\u0131\u015fmalar\u0131n s\u00fcrd\u00fc\u011f\u00fcn\u00fc beyan ediyor burada bir tarih beyan edilmedi\u011fi i\u00e7in her takvim yapra\u011f\u0131 bizim aleyhimize i\u015fledi\u011fi i\u00e7in biz S\u0131hhat Bakan\u0131m\u0131zdan rica ediyoruz; bize \u015fu tarihte bu ila\u00e7 gelecek derse biz de ba\u015f\u0131m\u0131z\u0131 yast\u0131\u011fa rahat koyar\u0131z.”<\/p>\n

Kaynak: ANKA \/ S\u0131hhat <\/div>\n","protected":false},"excerpt":{"rendered":"

SMA hastal\u0131\u011f\u0131na yakalanan \u00e7ocuklar\u0131n aileleri, ila\u00e7 talebiyle bug\u00fcn S\u0131hhat Bakanl\u0131\u011f\u0131’n\u0131n \u00f6n\u00fcne bas\u0131n a\u00e7\u0131klamas\u0131 yapt\u0131. Aileler, ilac\u0131n bir an evvel gelmesini talep ediyor.<\/p>\n","protected":false},"author":1,"featured_media":49407,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[1],"tags":[6911,4731,6226,68,5510],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/49406"}],"collection":[{"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=49406"}],"version-history":[{"count":1,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/49406\/revisions"}],"predecessor-version":[{"id":49408,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/49406\/revisions\/49408"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=\/wp\/v2\/media\/49407"}],"wp:attachment":[{"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=49406"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=49406"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/kutaybilen.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=49406"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}